We’re delighted to announce that Rett Syndrome Ireland has been selected by the GAA as an Official Charity for 2012. This is a huge boost for the Association, sufferers and families throughout the country. Being an Official Charity means a substantial donation to the work of the Association as well as support from the GAA in raising awareness of Rett Syndrome and of the work of the Association.
During a small ceremony at Croke Park, GAA headquarters, a cheque for €50,000 was presented to Andrew Kehoe, Chair, RSAI and Declan McPhillips, Committee Member of the Association.
Uachtarán Chumann Lúthchleas Criostóir Ó Cuana wished the charity every success in its vital work over the next year. He went on to say, “The GAA is glad to be able to help what is a most worthy cause for 2012 and in addition to the tangible benefits of being afforded the status of an official GAA charity, we also hope to be able to work with the Rett Syndrome Association to raise the profile of both the condition and the excellent work of the charity.”
Andrew Kehoe, Chairperson of the Association acknowledged the support of the GAA. saying “On behalf of Rett Syndrome Association Ireland and the families we represent I would like to express our deepest gratitude to Christy Cooney, Paraic Duffy and the GAA for their extraordinary generosity in making this donation.
“Rett Syndrome Association Ireland is a voluntary organisation and registered charity which relies solely on private donations and fundraising. This will go a long way in helping us to support families affected by Rett Syndrome, to help raise awareness in general and to assist with on-going research.”
Special thanks are also due to Declan McPhillips for all his great work on behalf of the Association to make this support possible.
Pictured above: Uachturan Chumann Luthcleas Gael Cristoir O'Cuana and, Ard Stiurthoir Paraic Duffy at Croke Park with Declan McPhilips and Andrew Kehoe, Rett Syndrome Ireland. Photo: Brian Lawless/ SPORTSFILE
Yes it's that time of the year again.
The Flora Mini-Marathon is coming up on June 4th. Registration opens soon.
If you would like to support Rett Syndrome Ireland on the run we can supply you with Sponsorship Cards, Rett Syndrome Ireland T-Shirts and caps.
Contact us here
Rett Syndrome Ireland hosts a Mailing List for families, Carers and Professionals working with people who have Rett. The aim of the List is to allow people to ask questions from others and share knowledge about anything to do with living and managing with Rett Syndrome. If you have a query send an email to the list and it is distributed to all the members, who can then reply. It's a simple way to keep in touch.
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